If you don't have a Kindle, here is the url for the free kindle e-reader. I know a lot of people don't like the though of reading whole books on computer, but since mine is a collection of essays to be read on occasion, this actually is a pretty good alternative.
http://www.amazon.com/gp/feature.html/ref=kcp_pc_mkt_lnd?docId=1000426311
Notes on brain injury recovery from a brain injury survivor. I have over 25 years experience with brain injury issues and have written two books. My writing is in short essays each focused on one single topic. It is appropriate for caregivers and family as well as people with a brain injury.
Saturday, March 31, 2012
Friday, March 23, 2012
New Book!
Here is the link for my new e-book with almost 50 new essays!
http://www.amazon.com/Expanded-Consciousness-Meditations-Injury-ebook/dp/B007NMO9QE/ref=sr_1_1?ie=UTF8&qid=1332529591&sr=8-1
http://www.amazon.com/Expanded-Consciousness-Meditations-Injury-ebook/dp/B007NMO9QE/ref=sr_1_1?ie=UTF8&qid=1332529591&sr=8-1
Thursday, March 15, 2012
Routine Reality
Routine is a constant reference as to when and where
I am. With brain injury one realizes just how fragile our awareness of place
and time really is. I can be at the mall with my wife and be looking at
something while she walks away. I will look up and suddenly nothing is as I
suspected and I will feel this sudden panic as I try to reorient myself, try to
find some clue that will tell me where I am and when I am. Not just what time
it is, or just what day it is, but what year is it? How old am I? A split second
of panic until I regain my perspective.
Routine allows me to compensate for my lack of
initiative. I may not notice that the house needs vacuuming, but I know that on
Mondays I vacuum. It is good to make lists for many things, but inserting
something into my routine allows me to do a number of tasks that would
overwhelm me if I saw them all on a list. Routine allows me to be a more
effective person.
Most people view routine as boring. “Boring as
compared to what?” I ask. “Boring as compared to being confused and inactive?”
I query. Variety is very important. Many people are distracted from
accomplishing long-term goals because they want immediate variety. I get my
variety long-term because routine keeps the distractions at bay. Day by day my
routine may seem boring, but I’ve accomplished so very much in the last eleven
years since my brain injury! These are
things I would never have even considered doing before. In addition to
doing all the tasks you might imagine in an ordinary life (I prefer “ordinary”
to “normal”) I also run five miles several times a week, I read seventy pages a
day, I ran for Lt. Governor in 1994 and 1998, I expect to get the Libertarian
party’s nomination for Governor in 2002, I facilitate the Stillwater support
group, I speak four languages besides English, and my writing has appeared in a
few Libertarian publications as well as in the brain injury newsletter, I
designed and built a teaching aid to show the effects of time distortion at
relative speeds, I protested the stadium tax increase, and more.
I don’t list all that to brag. I’m certainly no
genius and I sure don’t have limitless energy. It just really amazes me how
much a person can do if you just put it into a routine and doggedly persist. I
don’t question whether or not I want to do something on a daily basis, I just
get up and do it. I face each day with child like wonder and boundless
curiosity. Oh yes, and as always, I hone my will on adversity.
Thursday, March 8, 2012
Real Healing
A reporter asked me recently, “How long did your recovery
take?” My stock reply was that you never fully recover from brain injury, that
most people see the lion’s share of recovery within the first two years. All of
that is factual, but none of it is correct.
It is like asking, “How long does it
take to grow up?” Growing up is a process that never really ends. One does tend
to develop in different ways as one gets older and at some point we consider
ourselves “grown up.” However, you never really stop growing.
The same is true for brain injury.
There can be discrete measurable gains after brain injury that can be described
as recovery, but beyond that there is the intangible of personal growth.
Part of this personal growth I like
to label healing. Healing is the act of reconstructing ourselves after the
“loss of self” that is part of brain injury.
The first step is to accept that we have a brain
injury. This is more than just acknowledging the fact that it happened. It is
accepting the fact that you are not the person you were. Trying to be the
person you were is living in the past. When you are truly ready to be who you
are you are ready to move on.
The second step is to get over it. It is all too
easy to try and hold on to the deficits of brain injury. It becomes so very
much a part of who you are, that to move beyond it is like losing yourself all
over again. Yes you have deficits, but you are you in spite of your deficits,
and THAT is what makes you a better person.
The third step is to find value in the experience.
It is restitution for the soul. Restitution is the act of putting right what is
wrong. This is the true nature of healing. If you do not see your brain injury
as valuable, then your brain injury has accomplished nothing. This is
completely your choice. I found that my brain injury knocked me off my high
horse and allowed me to become a more compassionate person. Compassion has
unlocked riches I would have never received. My world is now larger and
encompasses broader horizons than I would have ever imagined. We must all find
that which has value to us. This will be different for everyone and is part of
this fortune hunt called life that is far too fleet.
Saturday, March 3, 2012
On Being Dependent
One
of the most difficult things about brain injury for me was the helplessness. I
was not used to being taken care of. I was used to being independent and strong
and letting others lean on me. After my accident it was always a constant
battle, striving to recover and yet yielding to assistance when necessary. It
was a balancing act and it was one I wasn’t very good at.
Facilitating a support group gave me
a whole new perspective. It allowed me to view my situation through the eyes of
others. Listening to caregivers and victims sharing their feelings I was able
to be on the outside looking in. For the first time I was able to imagine how
my wife must feel and I was able to hear how I must sound to her. This new
knowledge is one of the rewards that I have found in being a facilitator. My
only regret is that it took me ten years to figure this out.
A brain
injury is tough and it is overwhelming, one of the first things I was faced
with was that many of the things that brought me joy were now beyond my reach.
It was often easy to feel like there was nothing left to live for. I saw all my
dreams shattered. I felt I had been cheated and I had lived my life to completion.
As I often do in dark moments of despair I turned to “Illusions” by Richard
Bach, my favorite book I paged through it looking for an answer and this is
what I found:
Here is a test
to see if your mission in life is over,
if you’re
alive
it isn’t.
I’m just one person, but with over twnty years post TBI, I keep
finding reasons to be here. Open your heart and touch a life, there is never a
shortage of those who need someone to lend an ear.
At times I honestly felt there was nothing left to
live for, but in saying so I was telling others that they are not worth living
for. I can now imagine how that must have hurt. They were helping me because
they loved me, not because they pitied me, which is the way I felt. I decided I
must never esteem the love of others too lightly!
I had
always been the strong one. The one all others could lean on and draw from my
seemingly inexhaustible reservoir of strength. Now it was time to accept that I
had to be taken care of, and that I must yield the care giving responsibilities
to others, especially those I had previously taken care of. The shoe was on the
other foot! So, as much as I may not have liked this new arrangement, all the
wishing in the world wouldn’t make it otherwise. I had to face reality.
This didn’t mean I would stop
trying. If anything, the way I feel should motivate me to do whatever is
required to expedite my recovery. Until then I can accept help. All false
independence does is make everyone miserable. The least I can do is be
thankful, humble, and cherish the love I receive from others.
This is how I have decided to view
my world. This should make my path a little easier to traverse and I know it
will make the lives of my caregivers more rewarding. We live for them as they
live for us.
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